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National Brain Injury Providers Partner to Establish a Data Consortium to Demonstrate the Value of Post-Acute Rehabilitation

Posted Category: News.

United States – A select group of leading brain injury rehabilitation organizations from across the United States have announced a unique, one-of-a-kind alliance to improve outcomes in the rehabilitation field. Six organizations – Learning Services, On With Life, Pate Rehabilitation, Progressive Rehabilitation, ReMed and Shepherd Center – have partnered to create the Foundation to Advance Brain Rehabilitation (FABR). The partnership allows the six organizations to aggregate outcome data to launch the only known national collaborative database in the United States that captures the impact of brain injury rehabilitation following the acute care setting.  

The six FABR organizations represent 12 US states and comprehensively offer a continuum of post-acute neuro-rehabilitation and neuro-behavioral programs in various settings, including residential, inpatient, outpatient, day treatment, and home and community-based. FABR will utilize outcome data to research and demonstrate the value of post-acute brain injury rehabilitation within this continuum of services.

“The potential impact of improving quality of life, return to work, and community participation of post-inpatient brain injury rehabilitation has increased dramatically in the last 20 years as inpatient rehabilitation stays following acquired brain injury (ABI) have decreased from months to weeks,” shares Dr. James Malec, chief scientific officer for FABR and senior research professor emeritus at the Indiana University School of Medicine. “The power of the FABR data and research is that it will help providers and the entire brain injury field understand best practices and demonstrate the effectiveness of post-acute rehabilitation.”

Beginning in June 2020, outcome data from each FABR organization will be submitted to OutcomeInfo, a national web-based database system developed through the National Institutes of Health (NIH). The initial data set will include de-identified patient demographic information and Mayo-Portland Adaptability Inventory (MPAI-4) scores throughout the rehabilitation continuum.

In addition to identifying best practices in post-acute rehabilitation, a key goal in forming the FABR alliance is to justify care interventions and demonstrate a clear and measurable benefit for those interventions. This information can then be used by providers, patients and caregivers to advocate for appropriate access, benefit coverage, intensity and duration of rehabilitation services to achieve desired outcomes.

“Demonstrating the effectiveness and efficiency of specialized rehabilitation can be especially challenging for post-acute care providers,” shares Michael Choo, MD, chief medical officer for Paradigm and FABR’s medical consultative partner. “Rehabilitation benefits typically occur incrementally over the care continuum and the industry would benefit greatly by collaborating together to validate evidence-based minimum effective dose recommendations for many existing care interventions. The impact FABR can have in this area has life-changing potential for patients as well as providing guidance to both payers and policymakers.”

The six founding FABR organizations will remain as independent organizations but have formed a single non-profit entity to protect the confidentiality, aggregation and use of patient data. Founding members plan to add additional FABR organizations after the initial formative year.

Further information, including inquiries on how to become a part of the FABR work, can be requested through email at info@FABR.org.

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About FABR

The Foundation to Advance Brain Rehabilitation (FABR) is a nonprofit organization whose mission is to advance brain rehabilitation through scientific and strategic analysis of industry-wide data. More information on each FABR organization can be found online: Learning Services, On With Life, Pate Rehabilitation, Progressive Rehabilitation, ReMed, and Shepherd Center.


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